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dc.contributor.authorSpinetta, John J
dc.contributor.authorMasera, Giuseppe
dc.contributor.authorJankovic, Momcilo
dc.contributor.authorOppenheim, Daniel
dc.contributor.authorMartins, Antonio Gentil
dc.contributor.authorBen Arush, Myriam Weyl
dc.contributor.authorVan Dongen-Melman, Jeanette
dc.contributor.authorEpelman, Claudia
dc.contributor.authorMedin, Gabriela
dc.contributor.authorPekkanen, Kirsti
dc.contributor.authorEden, Tim O B
dc.date.accessioned2009-08-21T14:20:29Z
dc.date.available2009-08-21T14:20:29Z
dc.date.issued2003-04
dc.identifier.citationValid informed consent and participative decision-making in children with cancer and their parents: a report of the SIOP Working Committee on psychosocial issues in pediatric oncology. 2003, 40 (4):244-6 Med. Pediatr. Oncol.en
dc.identifier.issn0098-1532
dc.identifier.pmid12555253
dc.identifier.doi10.1002/mpo.10262
dc.identifier.urihttp://hdl.handle.net/10541/78236
dc.description.abstractThis is the tenth official document of the SIOP Working Committee on psychosocial issues in pediatric oncology, instituted in 1991. It is addressed to the pediatric oncology community. Children clearly have a right to participate in medical decisions regarding their own treatment, based on the developmental level of the child. The objective of these guidelines is to encourage physicians to share with the child developmentally relevant medical information specific to that particular child's health status, in the context of the child's own culture, so that he or she can actively participate in the decision-making process regarding his or her own health. These guidelines, geared toward this objective, discuss the child's right to medical information, the parents' legal responsibility for but not exclusive right over the child's health, and ways of encouraging the younger child's active participation in his or her own health care at an age-appropriate level of understanding. For adolescents, there should be a full and legally mandated power to make their own decisions regarding medical treatment.
dc.language.isoenen
dc.subjectPaediatricsen
dc.subject.meshAdolescent
dc.subject.meshAdult
dc.subject.meshChild
dc.subject.meshChild Welfare
dc.subject.meshChild, Preschool
dc.subject.meshDecision Making
dc.subject.meshEthics, Medical
dc.subject.meshHumans
dc.subject.meshInformed Consent
dc.subject.meshMedical Oncology
dc.subject.meshParent-Child Relations
dc.subject.meshPatient Advocacy
dc.subject.meshPatient Participation
dc.subject.meshPediatrics
dc.subject.meshPractice Guidelines as Topic
dc.titleValid informed consent and participative decision-making in children with cancer and their parents: a report of the SIOP Working Committee on psychosocial issues in pediatric oncology.en
dc.typeArticleen
dc.contributor.departmentDepartment of Psychology, San Diego State University, San Diego, California, USA.en
dc.identifier.journalMedical and Pediatric Oncologyen
html.description.abstractThis is the tenth official document of the SIOP Working Committee on psychosocial issues in pediatric oncology, instituted in 1991. It is addressed to the pediatric oncology community. Children clearly have a right to participate in medical decisions regarding their own treatment, based on the developmental level of the child. The objective of these guidelines is to encourage physicians to share with the child developmentally relevant medical information specific to that particular child's health status, in the context of the child's own culture, so that he or she can actively participate in the decision-making process regarding his or her own health. These guidelines, geared toward this objective, discuss the child's right to medical information, the parents' legal responsibility for but not exclusive right over the child's health, and ways of encouraging the younger child's active participation in his or her own health care at an age-appropriate level of understanding. For adolescents, there should be a full and legally mandated power to make their own decisions regarding medical treatment.


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