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    Exploring the decision-making preferences of people with colorectal cancer.

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    Authors
    Beaver, Kinta
    Jones, David R
    Susnerwala, Shabbir
    Craven, Olive
    Tomlinson, Mary
    Witham, Gary
    Luker, Karen
    Affiliation
    School of Nursing, Midwifery and Social Work, University of Manchester, Manchester, UK. kinta.beaver@manchester.ac.uk
    Issue Date
    2005-06
    
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    Abstract
    OBJECTIVES: To explore patient views on participation in treatment, physical care and psychological care decisions and factors that facilitate and hinder patients from making decisions. DESIGN: Qualitative study using semi-structured interviews with patients. SETTING AND PARTICIPANTS: Three NHS Trusts in the north-west of England. Theoretical sampling including 41 patients who had been treated for colorectal cancer. RESULTS: For patients, participation in the decision-making process was about being informed and feeling involved in the consultation process, whether patients actually made decisions or not. The perceived availability of treatment choices (surgery, radiotherapy, chemotherapy) was related to type of treatment. Factors that impacted on whether patients wanted to make decisions included a lack of information, a lack of medical knowledge and trust in medical expertise. Patients perceived that they could have a more participatory role in decisions related to physical and psychological care. CONCLUSION: This study has implications for health professionals aiming to implement policy guidelines that promote patient participation and shared partnerships. Patients in this study wanted to be well informed and involved in the consultation process but did not necessarily want to use the information they received to make decisions. The presentation of choices and preferences for participation may be context specific and it cannot be assumed that patients who do not want to make decisions about one aspect of their care and treatment do not want to make decisions about other aspects of their care and treatment.
    Citation
    Exploring the decision-making preferences of people with colorectal cancer. 2005, 8 (2):103-13 Health Expect
    Journal
    Health Expectations
    URI
    http://hdl.handle.net/10541/76553
    DOI
    10.1111/j.1369-7625.2005.00320.x
    PubMed ID
    15860051
    Type
    Article
    Language
    en
    ISSN
    1369-6513
    ae974a485f413a2113503eed53cd6c53
    10.1111/j.1369-7625.2005.00320.x
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