• Login
    View Item 
    •   Home
    • The Christie Research Publications Repository
    • All Christie Publications
    • View Item
    •   Home
    • The Christie Research Publications Repository
    • All Christie Publications
    • View Item
    JavaScript is disabled for your browser. Some features of this site may not work without it.

    Browse

    All of ChristieCommunitiesTitleAuthorsIssue DateSubmit DateSubjectsThis CollectionTitleAuthorsIssue DateSubmit DateSubjects

    My Account

    LoginRegister

    Local Links

    The Christie WebsiteChristie Library and Knowledge Service

    Statistics

    Display statistics

    Development of a quality of life questionnaire for patients with pancreatic neuroendocrine tumours (the PANNET module)

    • CSV
    • RefMan
    • EndNote
    • BibTex
    • RefWorks
    Thumbnail
    Name:
    J Neuroendocrinology - 2022 - ...
    Size:
    351.3Kb
    Format:
    PDF
    Description:
    Identified with Open Access button
    Download
    Authors
    Ramage, J. K.
    Friend, E.
    Randell, J.
    King, B.
    Fernandez Ortega, P.
    McNamara, Mairéad G
    Kaltsas, G.
    Falconi, M.
    Cwikla, J.
    Capdevila, J.
    Grozinsky-Glasberg, S.
    Mandair, D.
    Gamper, E.
    Srirajaskanthan, R.
    Weickert, M. O.
    Gray, D.
    Show allShow less
    Affiliation
    Hampshire Hospitals NHS Foundation Trust, Basingstoke, UK. University of Winchester, Winchester, UK. Instit Catala d'Oncologia, Barcelona, Spain. Division of Cancer Sciences, University of Manchester/The Christie NHS Foundation Trust, Manchester, UK. National and Kapodistrian University of Athens, Athens, Greece. Pancreatic Surgery Unit, Pancreas Translational & Clinical Research Center, IRCCS San Raffaele Scientific Institute, Milan, Italy. Indywidualna Specjalistyczna Praktyka Lekarska, Warsaw, Poland. Vall D'Hebron University Hospital, Vall Hebron Institute of Oncology (VHIO), Barcelona, Spain. Hadassah-Hebrew University Medical Centre, Jerusalem, Israel. Royal Free London NHS Foundation Trust, London, UK. Medical University of Innsbruck, Innsbruck, Austria. Kings Health Partners Neuroendocrine Centre, London, UK. Arden NET Unit, Coventry, UK.
    Issue Date
    2022
    
    Metadata
    Show full item record
    Abstract
    Pancreatic neuroendocrine tumours (panNET) are heterogeneous neoplasms usually characterised by slow growth and secretion of hormones, which often cause symptoms. The effect of these symptoms on quality of life (QoL) has not previously been examined in detail. EORTC (European Organisation for Research and Treatment of Cancer) guidelines were followed in phases 1–3 to produce a potential module of questions usable for trials in panNET, focusing on three common types of panNET. For two less common types, a list of symptoms was constructed. Following an extensive literature search and phase 1a interviews with patients and healthcare workers, a long list of potential issues (169) was obtained. This list was shown to 12 patients from three countries in phase 1b interviews to check that no items were missed. The list was reduced to 57 issues. The list of issues was converted to questions, mainly from existing validated questions within the EORTC item library. The list of questions was then used in a phase 3 international study in eight countries using seven languages. A provisional module of 24 items is presented for use in nonfunctioning panNET, gastrinoma and insulinoma. This module increases knowledge concerning QoL in this condition and may be a useful adjunct in clinical trials. A phase 4 trial is being considered for validation of this questionnaire.
    Citation
    Ramage JK, Friend E, Randell J, KING B, Fernandez Ortega P, McNamara MG, et al. Development of a quality of life questionnaire for patients with pancreatic neuroendocrine tumours (the PANNET module) [Internet]. Journal of Neuroendocrinology. Wiley; 2022.
    Journal
    Journal of Neuroendocrinology
    URI
    http://hdl.handle.net/10541/625105
    DOI
    10.1111/jne.13097
    PubMed ID
    35156246
    Additional Links
    https://dx.doi.org/10.1111/jne.13097
    Type
    Article
    Language
    en
    ae974a485f413a2113503eed53cd6c53
    10.1111/jne.13097
    Scopus Count
    Collections
    All Christie Publications

    entitlement

    Related articles

    • Development of a disease-specific Quality of Life questionnaire module for patients with gastrointestinal neuroendocrine tumours.
    • Authors: Davies AH, Larsson G, Ardill J, Friend E, Jones L, Falconi M, Bettini R, Koller M, Sezer O, Fleissner C, Taal B, Blazeby JM, Ramage JK, EORTC Quality of Life Group
    • Issue date: 2006 Mar
    • Development of a questionnaire (EORTC module) to measure quality of life in patients with cholangiocarcinoma and gallbladder cancer, the EORTC QLQ-BIL21.
    • Authors: Friend E, Yadegarfar G, Byrne C, Johnson CD, Sezer O, Pucciarelli S, Pereira SP, Chie WC, Banfield A, Ramage JK, EORTC Quality of Life Group
    • Issue date: 2011 Feb 15
    • Development of a disease specific quality of life (QoL) questionnaire module to supplement the EORTC core cancer QoL questionnaire, the QLQ-C30 in patients with pancreatic cancer. EORTC Study Group on Quality of Life.
    • Authors: Fitzsimmons D, Johnson CD, George S, Payne S, Sandberg AA, Bassi C, Beger HG, Birk D, Büchler MW, Dervenis C, Fernandez Cruz L, Friess H, Grahm AL, Jeekel J, Laugier R, Meyer D, Singer MW, Tihanyi T
    • Issue date: 1999 Jun
    • Development of the European Organisation for Research and Treatment of Cancer quality of life questionnaire module for older people with cancer: The EORTC QLQ-ELD15.
    • Authors: Johnson C, Fitzsimmons D, Gilbert J, Arrarras JI, Hammerlid E, Bredart A, Ozmen M, Dilektasli E, Coolbrandt A, Kenis C, Young T, Chow E, Venkitaraman R, Howse F, George S, O'Connor S, Yadegarfar G, EORTC Quality of Life Group
    • Issue date: 2010 Aug
    • An international update of the EORTC questionnaire for assessing quality of life in breast cancer patients: EORTC QLQ-BR45.
    • Authors: Bjelic-Radisic V, Cardoso F, Cameron D, Brain E, Kuljanic K, da Costa RA, Conroy T, Inwald EC, Serpentini S, Pinto M, Weis J, Morag O, Lindviksmoen Astrup G, Tomaszweksi KA, Pogoda K, Sinai P, Sprangers M, Aaronson N, Velikova G, Greimel E, Arraras J, Bottomley A, EORTC Quality of Life Group and Breast Cancer Group
    • Issue date: 2020 Feb
    DSpace software (copyright © 2002 - 2023)  DuraSpace
    Quick Guide | Contact Us
    Open Repository is a service operated by 
    Atmire NV
     

    Export search results

    The export option will allow you to export the current search results of the entered query to a file. Different formats are available for download. To export the items, click on the button corresponding with the preferred download format.

    By default, clicking on the export buttons will result in a download of the allowed maximum amount of items.

    To select a subset of the search results, click "Selective Export" button and make a selection of the items you want to export. The amount of items that can be exported at once is similarly restricted as the full export.

    After making a selection, click one of the export format buttons. The amount of items that will be exported is indicated in the bubble next to export format.