Specialized pediatric palliative care services in pediatric hematopoietic stem cell transplant centers
Authors
Mekelenkamp, H.Schröder, T.
Trigoso, E.
Hutt, D.
Galimard, J. E.
Kozijn, A.
Dalissier, A.
Gjergji, M.
Liptrott, S.
Kenyon, M.
Murray, John
Corbacioglu, S.
Bader, P
Affiliation
Willem-Alexander Children's Hospital, Department of Pediatrics, Leiden University Medical Center, P.O. Box 9600, 2300 RC Leiden, The NetherlandsIssue Date
2021
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Hematopoietic stem cell transplantation (HSCT) is widely used in pediatric patients as a successful curative therapy for life-threatening conditions. The treatment is intensive, with risks of serious complications and lethal outcomes. This study aimed to provide insight into current data on the place and cause of death of transplanted children, the available specialized pediatric palliative care services (SPPCS), and what services HSCT professionals feel the SPPCS team should provide. First, a retrospective database analysis on the place and cause of death of transplanted pediatric HSCT patients was performed. Second, a survey was performed addressing the availability of and views on SPPCS among HSCT professionals. Database analysis included 233 patients of whom the majority died in-hospital: 38% in the pediatric intensive care unit, 20% in HSCT units, 17% in other hospitals, and 14% at home or in a hospice (11% unknown). For the survey, 98 HSCT professionals from 54 centers participated. Nearly all professionals indicated that HSCT patients should have access to SPPCS, especially for pain management, but less than half routinely referred to this service at an early stage. We, therefore, advise HSCT teams to integrate advance care planning for pediatric HSCT patients actively, ideally from diagnosis, to ensure timely SPPCS involvement and maximize end-of-life preparation.Citation
Mekelenkamp H, Schröder T, Trigoso E, Hutt D, Galimard J-E, Kozijn A, et al. Specialized Pediatric Palliative Care Services in Pediatric Hematopoietic Stem Cell Transplant Centers. Children. 2021 Jul 21;8(8):615.Journal
ChildrenDOI
10.3390/children8080615PubMed ID
34438506Additional Links
https://dx.doi.org/10.3390/children8080615Type
ArticleLanguage
enae974a485f413a2113503eed53cd6c53
10.3390/children8080615
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