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dc.contributor.authorRooney, A. G.
dc.contributor.authorHewins, W.
dc.contributor.authorWalker, A.
dc.contributor.authorWithington, Lisa
dc.contributor.authorMackinnon, M.
dc.contributor.authorRobson, Sara
dc.contributor.authorGreen, Aimee
dc.contributor.authorAnderson, G.
dc.contributor.authorBulbeck, H.
dc.contributor.authorTorrens, C.
dc.contributor.authorEmerson, Julie
dc.contributor.authorDunlop, J.
dc.contributor.authorWelsh, M.
dc.contributor.authorMcEleney, T.
dc.contributor.authorHopcroft, L.
dc.contributor.authorWells, M.
dc.contributor.authorMcBain, Catherine A
dc.contributor.authorChalmers, A.
dc.contributor.authorGrant, R.
dc.date.accessioned2021-01-06T11:15:19Z
dc.date.available2021-01-06T11:15:19Z
dc.date.issued2020en
dc.identifier.citationRooney AG, Hewins W, Walker A, Withington L, Mackinnon M, Robson S, et al. Innv-27. Bt-Life (Brain Tumours, Lifestyle Interventions, and Fatigue Evaluation): Lessons Learned from Running a Novel Multi-Sectoral Research Trial. Neuro-Oncology. 2020;22(Supplement_2):ii122-ii.en
dc.identifier.doi10.1093/neuonc/noaa215.510en
dc.identifier.urihttp://hdl.handle.net/10541/623601
dc.description.abstractBACKGROUND: BT-LIFE is a multi-centre RCT of novel lifestyle coaching treatments for fatigued brain tumour patients. To our knowledge it is also the first example of ‘multi-sectoral research’ to combine healthcare, private, and charity sectors in this population. To maximise learning, the trial team devised a structured reflection opportunity to ask, “What went well and what would we do differently next time?” METHOD: After trial closedown we convened a six-hour ‘focus group’ for management, principle investigators, research assistants, interventionists, qualitative researchers, trial statisticians, and the funder. Discussion was structured using a ‘timeline’ wall-chart which attendees freely populated with post-it notes summarising learning points from the trial. Minutes were taken in duplicate. RESULTS: In total n=19 team members contributed. Many points were study-specific and will be used internally to plan a larger trial. Among points of wider interest, examples of success included: using regular teleconferences to co-ordinate a cohesive and highly collaborative team; obtaining secure nhs.net email addresses to facilitate multi-sectoral communication; and the clear value of employing one part-time research assistant per centre instead of relying on busy clinical staff to recruit. General future learning points included: speak to the prospective sponsor and ethical committees when writing the grant application to avoid pitfalls and facilitate faster opening if funding is secured; consider preceding emails with a phone call to ‘lay the ground’ in time-sensitive situations; identify staff training requirements as early as possible and cascade aggressively; and be sensitive to the fact that inter-sectoral attitudes and practices may vary widely and need actively monitored and managed. Therefore frequent and secure communication, pro-active problem-spotting, and inter-sectoral value alignment appear critical for success. CONCLUSION: BT-LIFE provides many useful lessons for anyone interested in running multi-sectoral research.en
dc.language.isoenen
dc.relation.urlhttps://dx.doi.org/10.1093/neuonc/noaa215.510en
dc.titleBT-LIFE (brain tumours, lifestyle interventions, and fatigue evaluation): lessons learned from running a novel multi-sectoral research trialen
dc.typeMeetings and Proceedingsen
dc.contributor.departmentNHS Lothian, Edinburgh, United Kingdomen
dc.identifier.journalNeuro-Oncologyen
dc.description.noteen]


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