BT-LIFE (brain tumours, lifestyle interventions, and fatigue evaluation): lessons learned from running a novel multi-sectoral research trial
dc.contributor.author | Rooney, A. G. | |
dc.contributor.author | Hewins, W. | |
dc.contributor.author | Walker, A. | |
dc.contributor.author | Withington, Lisa | |
dc.contributor.author | Mackinnon, M. | |
dc.contributor.author | Robson, Sara | |
dc.contributor.author | Green, Aimee | |
dc.contributor.author | Anderson, G. | |
dc.contributor.author | Bulbeck, H. | |
dc.contributor.author | Torrens, C. | |
dc.contributor.author | Emerson, Julie | |
dc.contributor.author | Dunlop, J. | |
dc.contributor.author | Welsh, M. | |
dc.contributor.author | McEleney, T. | |
dc.contributor.author | Hopcroft, L. | |
dc.contributor.author | Wells, M. | |
dc.contributor.author | McBain, Catherine A | |
dc.contributor.author | Chalmers, A. | |
dc.contributor.author | Grant, R. | |
dc.date.accessioned | 2021-01-06T11:15:19Z | |
dc.date.available | 2021-01-06T11:15:19Z | |
dc.date.issued | 2020 | en |
dc.identifier.citation | Rooney AG, Hewins W, Walker A, Withington L, Mackinnon M, Robson S, et al. Innv-27. Bt-Life (Brain Tumours, Lifestyle Interventions, and Fatigue Evaluation): Lessons Learned from Running a Novel Multi-Sectoral Research Trial. Neuro-Oncology. 2020;22(Supplement_2):ii122-ii. | en |
dc.identifier.doi | 10.1093/neuonc/noaa215.510 | en |
dc.identifier.uri | http://hdl.handle.net/10541/623601 | |
dc.description.abstract | BACKGROUND: BT-LIFE is a multi-centre RCT of novel lifestyle coaching treatments for fatigued brain tumour patients. To our knowledge it is also the first example of ‘multi-sectoral research’ to combine healthcare, private, and charity sectors in this population. To maximise learning, the trial team devised a structured reflection opportunity to ask, “What went well and what would we do differently next time?” METHOD: After trial closedown we convened a six-hour ‘focus group’ for management, principle investigators, research assistants, interventionists, qualitative researchers, trial statisticians, and the funder. Discussion was structured using a ‘timeline’ wall-chart which attendees freely populated with post-it notes summarising learning points from the trial. Minutes were taken in duplicate. RESULTS: In total n=19 team members contributed. Many points were study-specific and will be used internally to plan a larger trial. Among points of wider interest, examples of success included: using regular teleconferences to co-ordinate a cohesive and highly collaborative team; obtaining secure nhs.net email addresses to facilitate multi-sectoral communication; and the clear value of employing one part-time research assistant per centre instead of relying on busy clinical staff to recruit. General future learning points included: speak to the prospective sponsor and ethical committees when writing the grant application to avoid pitfalls and facilitate faster opening if funding is secured; consider preceding emails with a phone call to ‘lay the ground’ in time-sensitive situations; identify staff training requirements as early as possible and cascade aggressively; and be sensitive to the fact that inter-sectoral attitudes and practices may vary widely and need actively monitored and managed. Therefore frequent and secure communication, pro-active problem-spotting, and inter-sectoral value alignment appear critical for success. CONCLUSION: BT-LIFE provides many useful lessons for anyone interested in running multi-sectoral research. | en |
dc.language.iso | en | en |
dc.relation.url | https://dx.doi.org/10.1093/neuonc/noaa215.510 | en |
dc.title | BT-LIFE (brain tumours, lifestyle interventions, and fatigue evaluation): lessons learned from running a novel multi-sectoral research trial | en |
dc.type | Meetings and Proceedings | en |
dc.contributor.department | NHS Lothian, Edinburgh, United Kingdom | en |
dc.identifier.journal | Neuro-Oncology | en |
dc.description.note | en] |