Patient and professional experiences of palliative care referral discussions from cancer services: A qualitative interview study
AffiliationAcademic Unit of Palliative Care, Leeds Institute of Health Sciences, University of Leeds, Leeds, UK.
MetadataShow full item record
AbstractObjectives: The aim of this paper was to identify current barriers, facilitators and experiences of raising and discussing palliative care with people with advanced cancer. Methods: Semi-structured interviews were conducted with patients with advanced cancer and healthcare professionals (HCPs). Patients were included who had and had not been referred to palliative care. Transcripts were analysed using framework analysis. Results: Twenty-four patients and eight HCPs participated. Two overarching themes and five sub-themes emerged: Theme one-referral process: timing and triggers, responsibility. Theme two-engagement: perception of treatment, prognosis and palliative care, psychological and emotional preparedness for discussion, and understanding how palliative care could benefit present and future care. Conclusion: There is a need to identify suitable patients earlier in their cancer trajectory, address misconceptions about palliative care, treatment and prognosis, and better prepare patients and HCPs to have meaningful conversations about palliative care. Patients and HCPs need to establish and communicate the relevance of palliative care to the patient's current and future care, and be clear about the referral process.
CitationPini S, Hackett J, Taylor S, Bekker HL, Kite S, Bennett MI, et al. Patient and professional experiences of palliative care referral discussions from cancer services: A qualitative interview study. Eur J Cancer Care (Engl). 2020:e13340.
JournalEuropean Journal of Cancer Care
- Palliative care experiences of adult cancer patients from ethnocultural groups: a qualitative systematic review protocol.
- Authors: Busolo D, Woodgate R
- Issue date: 2015 Jan
- A qualitative exploration of patient and healthcare professionals' views and experiences of palliative rehabilitation during advanced lung cancer treatment.
- Authors: Payne C, McIlfatrick S, Larkin P, Dunwoody L, Gracey J
- Issue date: 2018 Dec
- Communication and shared decision-making with patients with limited health literacy; helpful strategies, barriers and suggestions for improvement reported by hospital-based palliative care providers.
- Authors: Roodbeen R, Vreke A, Boland G, Rademakers J, van den Muijsenbergh M, Noordman J, van Dulmen S
- Issue date: 2020
- "We never speak about death." Healthcare professionals' views on palliative care for inpatients in Tanzania: A qualitative study.
- Authors: Lewis EG, Oates LL, Rogathi J, Duinmaijer A, Shayo A, Megiroo S, Bakari B, Dewhurst F, Walker RW, Dewhurst M, Urasa S
- Issue date: 2018 Oct
- Access and referral to palliative care for patients with chronic heart failure: A qualitative study of healthcare professionals.
- Authors: Singh GK, Ramjan L, Ferguson C, Davidson PM, Newton PJ
- Issue date: 2020 May