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    Phase I cancer trials: a qualitative study of specialist palliative care

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    Authors
    Bellhouse, Sarah
    Galvin, L
    Turner, Lorraine
    Taylor, Sally
    Davies, Michelle
    Krebs, Matthew G
    Berman, Richard
    Yorke, Janelle
    Affiliation
    Christie Patient Centred Research (CPCR), The Christie NHS Foundation Trust, Manchester
    Issue Date
    2019
    
    Metadata
    Show full item record
    Abstract
    OBJECTIVE: In recent years, a simultaneous care model for advanced cancer patients has been recommended meaning that palliative care services are offered throughout their cancer journey. To inform the successful adoption of this model in a phase I trial context, the study aimed to explore patients' care needs and their perceptions of specialist palliative care. METHODS: Semi-structured interviews were conducted with 10 advanced cancer patients referred to the Experimental Cancer Medicine team. Interviews were transcribed verbatim and thematically analysed with a framework approach to data organisation. RESULTS: Despite reporting considerable physical and psychological impacts from cancer and cancer treatment, participants did not recognise a need for specialist palliative care support. Understanding of the role of specialist palliative care was largely limited to end of life care. There was perceived conflict between considering a phase I trial and receiving specialist palliative care. Participants felt specialist palliative care should be introduced earlier and educational resources developed to increase patient acceptability of palliative care services. SIGNIFICANCE OF RESULTS: Patients with advanced cancer referred for phase I trials are likely to benefit from specialist palliative care. However, this study suggests patients may not recognise a need for support nor accept this support due to misperceptions about the role of palliative care. Developing a specific educational resource about specialist palliative care for this population would help overcome barriers to engaging with a simultaneous care model.
    Citation
    Bellhouse S, Galvin L, Turner L, Taylor S, Davies M, Krebs M, et al. Phase I cancer trials: a qualitative study of specialist palliative care. BMJ Support Palliat Care. 2019.
    Journal
    BMJ supportive & palliative care
    URI
    http://hdl.handle.net/10541/622645
    DOI
    10.1136/bmjspcare-2019-001919
    PubMed ID
    31784463
    Additional Links
    https://dx.doi.org/10.1136/bmjspcare-2019-001919
    Type
    Article
    Language
    en
    ae974a485f413a2113503eed53cd6c53
    10.1136/bmjspcare-2019-001919
    Scopus Count
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    All Christie Publications

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