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    Patient perceptions of the impact of treatment (surgery and radiotherapy) for soft tissue sarcoma

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    Authors
    Hewitt, L
    Powell, R
    Zenginer, K
    Coyle, Catherine
    Murray, H
    Cooper, L
    Gregory, J
    Affiliation
    School of Health Sciences & Manchester Centre for Health Psychology, University of Manchester, Manchester
    Issue Date
    2019
    
    Metadata
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    Abstract
    Background and Objectives. Treatment for soft tissue sarcoma (STS) is challenging for patients. This study aimed to gain an in-depth understanding of patients’ experiences of STS treatment, including whether the sequence of treatment (preoperative or postoperative radiotherapy) influences patient perceptions. Methods. Face-to-face semi-structured interviews were conducted with nineteen patients who had been treated for STS with surgery and radiotherapy between 2011 and 2016. Topics discussed included perceptions of treatment, social support, and coping mechanisms. Qualitative, inductive, thematic analysis was conducted and structured using the Framework approach. Results. Treatment sequence itself did not appear to cause concern, but uncertainty regarding treatment and side effects could negatively impact participants. Social relationships and individual coping strategies influenced participants’ experiences of treatment. Conclusions. Participants’ perceptions of the treatment process varied; the experience was highly individual. It is important to ensure individual psychosocial and information needs are met. In particular, the removal of uncertainty regarding treatment is important in supporting patients undergoing treatment for soft tissue sarcoma.
    Citation
    Hewitt L, Powell R, Zenginer K, Coyle C, Murray H, Cooper L, et al. Patient perceptions of the impact of treatment (surgery and radiotherapy) for soft tissue sarcoma. Sarcoma. 2019;2019:9581781.
    Journal
    Sarcoma
    URI
    http://hdl.handle.net/10541/621597
    DOI
    10.1155/2019/9581781
    Additional Links
    https://dx.doi.org/10.1155/2019/9581781
    Type
    Article
    Language
    en
    ae974a485f413a2113503eed53cd6c53
    10.1155/2019/9581781
    Scopus Count
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