Participation in a randomised controlled feasibility study of a complex intervention for the management of the Respiratory Symptom Distress Cluster in lung cancer: patient, carer and research staff views.
Mackereth, Peter A
AffiliationHealth Services Research, University of Liverpool, Liverpool
MetadataShow full item record
AbstractThis paper reports finding from a nested qualitative study designed to elicit the views and perceptions of those who participated in a randomised controlled feasibility trial testing a non-pharmacological intervention, Respiratory Distress Symptom Intervention (RDSI), for the management of the breathlessness-cough-fatigue symptom cluster in lung cancer. Semi-structured interviews were conducted with 11 lung cancer patients, three caregivers and seven researchers involved in recruitment, consent, RDSI training and delivery and participant follow-up. Thematic analysis identified key considerations including: the importance of informed consent emphasising commitment to completion of paperwork and raising awareness of potential sensitivities relating to content of questionnaires; ensuring screening for the presence of symptoms reflects the language used by patients; appreciation of the commitment required from participants to learn intervention techniques and embed them as part of everyday life; conduct of interviews with patients who decline to participate; and conduct of serial interviews with those receiving RDSI to further inform its routine implementation into clinical practice. This study will inform the development of a fully powered follow-on trial testing the hypothesis that RDSI plus usual care is superior to usual care alone in the effective management of this symptom cluster in lung cancer.
CitationParticipation in a randomised controlled feasibility study of a complex intervention for the management of the Respiratory Symptom Distress Cluster in lung cancer: patient, carer and research staff views. 2016: Eur J Cancer Care
JournalEuropean Journal of Cancer Care
- Management of the respiratory distress symptom cluster in lung cancer: a randomised controlled feasibility trial.
- Authors: Yorke J, Lloyd-Williams M, Smith J, Blackhall F, Harle A, Warden J, Ellis J, Pilling M, Haines J, Luker K, Molassiotis A
- Issue date: 2015 Nov
- Considerations in developing and delivering a nonpharmacological intervention for symptom management in lung cancer: the views of patients and informal caregivers.
- Authors: Ellis J, Wagland R, Tishelman C, Williams ML, Bailey CD, Haines J, Caress A, Lorigan P, Smith JA, Booton R, Blackhall F, Molassiotis A
- Issue date: 2012 Dec
- Considerations in developing and delivering a non-pharmacological intervention for symptom management in lung cancer: the views of health care professionals.
- Authors: Wagland R, Ellis J, Bailey CD, Haines J, Caress A, Williams ML, Lorigan P, Smith J, Tishelman C, Booton R, Luker K, Blackhall F, Molassiotis A
- Issue date: 2012 Oct
- A qualitative exploration of a respiratory distress symptom cluster in lung cancer: cough, breathlessness and fatigue.
- Authors: Molassiotis A, Lowe M, Blackhall F, Lorigan P
- Issue date: 2011 Jan
- Carer administration of as-needed subcutaneous medication for breakthrough symptoms in people dying at home: the CARiAD feasibility RCT.
- Authors: Poolman M, Roberts J, Wright S, Hendry A, Goulden N, Holmes EA, Byrne A, Perkins P, Hoare Z, Nelson A, Hiscock J, Hughes D, O'Connor J, Foster B, Reymond L, Healy S, Lewis P, Wee B, Johnstone R, Roberts R, Parkinson A, Roberts S, Wilkinson C
- Issue date: 2020 May