• Guidelines for a therapeutic alliance between families and staff: a report of the SIOP Working Committee on Psychosocial Issues in Pediatric Oncology.

      Masera, Giuseppe; Spinetta, John J; Jankovic, Momcilo; Ablin, Arthur R; Buchwall, Ilana; Van Dongen-Melman, Jeanette; Eden, Tim O B; Epelman, Claudia; Green, Daniel M; Kosmidis, Helen Vasiliatou; et al. (1998-03)
      This, the fifth official document of the SIOP Working Committee on Psychosocial Issues in Pediatric Oncology, develops another important topic: the Therapeutic Alliance between families and staff. This is addressed to the Pediatric Oncology Community as Guidelines that could be followed. Every parent, medical staff member, and psychosocial professional involved in the care of the child should be responsible for cooperating in the child's best interest. Everyone must work together toward the common goal of curing the cancer and minimizing its medical and psychosocial side-effects.
    • Refusal, non-compliance, and abandonment of treatment in children and adolescents with cancer: a report of the SIOP Working Committee on Phychosocial Issues in Pediatric Oncology.

      Spinetta, John J; Masera, Giuseppe; Eden, Tim O B; Oppenheim, Daniel; Martins, Antonio Gentil; Van Dongen-Melman, Jeanette; Siegler, Mark; Eiser, Christine; Ben Arush, Myriam Weyl; Kosmidis, Helen Vasiliatou; et al. (2002-02)
    • Valid informed consent and participative decision-making in children with cancer and their parents: a report of the SIOP Working Committee on psychosocial issues in pediatric oncology.

      Spinetta, John J; Masera, Giuseppe; Jankovic, Momcilo; Oppenheim, Daniel; Martins, Antonio Gentil; Ben Arush, Myriam Weyl; Van Dongen-Melman, Jeanette; Epelman, Claudia; Medin, Gabriela; Pekkanen, Kirsti; et al. (2003-04)
      This is the tenth official document of the SIOP Working Committee on psychosocial issues in pediatric oncology, instituted in 1991. It is addressed to the pediatric oncology community. Children clearly have a right to participate in medical decisions regarding their own treatment, based on the developmental level of the child. The objective of these guidelines is to encourage physicians to share with the child developmentally relevant medical information specific to that particular child's health status, in the context of the child's own culture, so that he or she can actively participate in the decision-making process regarding his or her own health. These guidelines, geared toward this objective, discuss the child's right to medical information, the parents' legal responsibility for but not exclusive right over the child's health, and ways of encouraging the younger child's active participation in his or her own health care at an age-appropriate level of understanding. For adolescents, there should be a full and legally mandated power to make their own decisions regarding medical treatment.