Service evaluation of MyChristie-MyHealth, an electronic patient reported outcome measure integrated into clinical cancer care
Shipman, Lee Chan, Clara Faivre-Finn, Corinne Fenemore, Jackie Harris, Maggie A Salem, Ahmed Sheikh, Hamid Y Woolf, David K
Shipman, Lee
Chan, Clara
Faivre-Finn, Corinne
Fenemore, Jackie
Harris, Maggie A
Salem, Ahmed
Sheikh, Hamid Y
Woolf, David K
Citations
Altmetric:
Abstract
Introduction: Electronic Patient-Reported Outcome Measures
(ePROMs) are multidimensional, digitalised health questionnaires sent to patients in order to assess their subjective experience
of health and disease. They are becoming particularly prevalent
in cancer care, where patients may experience wide-ranging
symptoms and side-effects. MyChristie-MyHealth is the ePROM
established into routine care at the Christie NHS Foundation Trust in
2019. We conducted an evaluation of this service in order to identify
key barriers to its use, and also potential strategies for improvement.
Methods: Data collection: Patients who had opted out of completing
ePROMs (n=87) and who had completed at least one ePROM (n=87)
were identified. Collected data included age, occupation, diagnosis
and treatment intent. Semi-structured Interviews: Held with Non-completers (n=30) and Completers (n=31) of ePROMs, as well as
clinician users (n=6). Questions covered themes such as accessibility,
acceptability and usefulness, and ways in which the service could be
improved.
Results: Non-completers of ePROMs were older (median age 72 vs
66 years, p=0.005), had a history of unemployment or manual type
work (86% vs 58%, p=0.003), on treatment with curative intent (OR
1.448, p=0.045) and less likely to be in a clinical trial (OR 0.531,
p=0.011) (see Fig. 1). They shared some common misconceptions,
such as that the invite link may have been a scam, and had reluctance
with technology, but willing to complete ePROMs via email rather
than Smartphone. Completers of ePROMs wanted their results to be
acknowledged by their clinicians, and thought that inclusion of
white-space response boxes would be an improvement. Clinicians
wanted ePROM results to be displayed in a more user-friendly way Conclusions: We have broadly characterised non-completers
of ePROMs in order to identify those in need of extra support or
encouragement in the clinic. An action plan resulting from this
review will inform the future development of MyChristie-MyHealth.
Affiliation
Description
Date
2022
Publisher
Collections
Keywords
Type
Meetings and Proceedings
Citation
Shipman L, Chan C, Faivre-Finn C, Fenemore J, Harris M, Salem A, et al. Service evaluation of MyChristie-MyHealth, an electronic patient reported outcome measure integrated into clinical cancer care. Vol. 165, Lung Cancer. Elsevier BV; 2022. p. S66.