MyChristie-MyHealth: introducing electronic patient reported outcome measures (ePROMs) in routine practice to revolutionise cancer care
Christodoulou, Marianna Khalil, N Rust, P Thomson, David J Smith, Ed Howell, Sacha J Price, J Fenemore, Jackie Neal, Hilary Halkyard, Emma
Christodoulou, Marianna
Khalil, N
Rust, P
Thomson, David J
Smith, Ed
Howell, Sacha J
Price, J
Fenemore, Jackie
Neal, Hilary
Halkyard, Emma
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Abstract
Introduction: The integration of Patient Reported Outcome
Measures (PROMs) in oncology improves survival and quality of
life in clinical trials. Our organisation is, to our knowledge, the first
cancer centre worldwide to introduce electronic PROMs (ePROMs)
on a large scale as a standard service in clinical practice.
Methods: We developed an ePROMs platform, ‘MyChristie-MyHealth’,
where patients complete online questionnaires remotely. The
questionnaires include Quality of Life (EQ-5D-5L) and symptombased
questions, adapted from the Common Terminology Criteria
for Adverse Events (v4.03) following clinician and patient feedback.
Following questionnaire completion, patients receive advice on
the management of their symptoms based on their responses (Fig.
1). Clinicians review the results through an online portal which is
currently separate to the Trust’s electronic patient record. The service
received local Information Governance Caldicott approval and clinical
safety sign-off.
Results: From January 2019, ‘MyChristie-MyHealth’ was rolled out
to all patients with lung and head and neck cancer, as well as those
treated with Proton Beam Therapy (≥16 years old). Patients received
a text message or email containing a web link 3 days prior to their
outpatient clinic appointment. Using the link, patients accessed
‘MyChristie-MyHealth’ and completed questionnaires remotely.
Out of the 5062 questionnaires sent to lung cancer patients from January-September 2019, 1781 (35%) were completed. Completion
rates remained overall stable since the initial roll out, reaching a
maximum completion rate of 51% in May 2019. The main challenge
is clinical team engagement due to the platform not being integrated
into the Trust’s electronic patient record.
Conclusion: The implementation of ePROMs in routine clinical
practice is feasible. Future work will focus on integrating the platform
to our electronic patient record, using ePROMs to personalise
follow-up pathways and developing a real-time response platform
with clinical staff contacting patients who report severe symptoms.
Affiliation
Description
Date
2020
Publisher
Collections
Keywords
Type
Meetings and Proceedings
Citation
Christodoulou M, Khalil N, Rust P, Thomson DJ, Smith E, Howell SJ, et al. MyChristie-MyHealth: introducing electronic patient reported outcome measures (ePROMs) in routine practice to revolutionise cancer care. Lung Cancer. 2020;139:S86-S