Implementing electronic patient reported outcome measures (ePROMs) into routine lung cancer follow- up: the patient perspective
Payne, A Christodoulou, Marianna Khalil, N Rust, P Thompson, David J Smith, Ed Fenemore, Jackie Neal, Hilary Barker-Hewitt, Matthew
Payne, A
Christodoulou, Marianna
Khalil, N
Rust, P
Thompson, David J
Smith, Ed
Fenemore, Jackie
Neal, Hilary
Barker-Hewitt, Matthew
Citations
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Abstract
Introduction: PROMs have been shown to improve survival and
quality of life in oncology patients within the scope of clinical trials.
Our organisation is the first UK institution to implement large scale
electronic PROMs (ePROMs) collection into routine lung cancer care.
This study investigates patient experiences of using ePROMs.
Methods: Lung cancer patients who had completed (either alone or
with help from a proxy) ≥1 ePROMs questionnaire were approached
to complete a Patient Reported Experience Measure (PREM) survey
analysing their experiences.
Results: Between May and June 2019 107 lung and head-and-neck
cancer patients were approached to complete a PREM. Of the total
100 completed PREMs, 78 patients had lung cancer. Median age 68.5
years; 54% female. Most patients had a performance status ≤1 (84%),
stage III/IV disease (78%) and an Adult Comorbidity Evaluation
Score of 0–1 (73%). All patients found ePROMs easy to understand
and most (98%) found it easy to follow and timely to complete.
Sixty-two (79%) patients reported improved communication with
their clinical team and 69 (89%) patients felt more involved in their
care. Eighty-five percent (23/27) of patients who reported seeking
medical advice, felt that ePROMs prompted them do so sooner.
Some patients commented that clinicians were not discussing their
ePROMs results during their appointment. Compliance data for lung
and head-and-neck patients was collected from January 2019 until
June 2019. Overall compliance rate was 35%.
Conclusion: Routine use of ePROMs in lung cancer is feasible and
acceptable to patients. Further work is needed to improve patient
and clinician compliance, explore the experiences of non-compliant
patients and investigate the impact of the ePROMs service on other
hospital services.
Affiliation
Description
Date
2020
Publisher
Collections
Keywords
Type
Meetings and Proceedings
Citation
Payne A, Christodoulou M, Khalil N, Rust P, Thompson DJ, Smith E, et al. Implementing electronic patient reported outcome measures (ePROMs) into routine lung cancer follow- up: the patient perspective. Lung Cancer. 2020;139:S86-S7