Routine electronic patient reported outcomes measures (ePROMs) for patients with lung cancer
Crockett, Cathryn Bayman, Neil A Chan, Clara Coote, Joanna H Harris, Maggie A Pemberton, Laura S Salem, Ahmed Sheikh, Hamid Y Woolf, David K Faivre-Finn, Corinne
Crockett, Cathryn
Bayman, Neil A
Chan, Clara
Coote, Joanna H
Harris, Maggie A
Pemberton, Laura S
Salem, Ahmed
Sheikh, Hamid Y
Woolf, David K
Faivre-Finn, Corinne
Citations
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Abstract
Background: Patient-reported outcomes measures (PROMs) have
been shown to improve outcomes, including survival and quality of
life (QoL), for patients with cancer (Basch et al., 2016). In January
2019 the Christie NHS Foundation Trust became one of the first
cancer centres worldwide to establish electronic PROMs (ePROMs)
as a part of routine clinical practice in patients with lung cancer,
head & neck cancer and those receiving proton beam therapy. The
initiative is funded by the Christie charity.
Method: An online platform, “My Christie-MyHealth,” was developed
to facilitate the remote completion of ePROM questionnaires by
patients. The questionnaires assess their symptoms, using questions
adapted from Common Terminology Criteria for Adverse Events
Version 5.0, and also QoL, using the EQ-5D-5L tool. Patients are
asked to routinely complete an ePROM questionnaire prior to any
consultation. Depending on their responses, they may be offered
symptom-control advice or to seek urgent medical attention.
Clinicians can now view these responses directly on the patient
electronic record. Previously they needed to access a separate portal.
Results: Between January 2019 and November 2020, a total of 17,470
ePROMs were sent to patients with lung cancer and 7,418 (42.5%) were completed. 4604 of 9327 (49.4%) forms were completed in
2020 compared with 2814 of 8143 (34.6%) in 2019. Completion rates
have improved slowly over time (Fig. 1). Efforts have been made to
promote the use of ePROMs to clinical staff throughout the trust.
This has involved presentation at Grand Rounds and inclusion
in hospital newsletters. Patients also receive encouragement/
reminders to complete questionnaires through telephone calls from
Patient Outcome Co-ordinators.
Conclusion: Patients with lung cancer treated at our institution
are routinely asked to complete ePROMs and completion rates are
improving. Work is currently underway to help further address both
patient and clinician-associated barriers to their routine use.
Affiliation
Description
Date
2021
Publisher
Collections
Keywords
Type
Meetings and Proceedings
Citation
Crockett C, Bayman N, Chan C, Coote J, Harris M, Pemberton L, et al. Routine electronic patient reported outcomes measures (ePROMs) for patients with lung cancer. Lung Cancer . 2021 Jun;156:S6.