Valid informed consent and participative decision-making in children with cancer and their parents: a report of the SIOP Working Committee on psychosocial issues in pediatric oncology.
Spinetta, John J Masera, Giuseppe Jankovic, Momcilo Oppenheim, Daniel Martins, Antonio Gentil Ben Arush, Myriam Weyl Van Dongen-Melman, Jeanette Epelman, Claudia Medin, Gabriela Pekkanen, Kirsti
Spinetta, John J
Masera, Giuseppe
Jankovic, Momcilo
Oppenheim, Daniel
Martins, Antonio Gentil
Ben Arush, Myriam Weyl
Van Dongen-Melman, Jeanette
Epelman, Claudia
Medin, Gabriela
Pekkanen, Kirsti
Citations
Altmetric:
Abstract
This is the tenth official document of the SIOP Working Committee on psychosocial issues in pediatric oncology, instituted in 1991. It is addressed to the pediatric oncology community. Children clearly have a right to participate in medical decisions regarding their own treatment, based on the developmental level of the child. The objective of these guidelines is to encourage physicians to share with the child developmentally relevant medical information specific to that particular child's health status, in the context of the child's own culture, so that he or she can actively participate in the decision-making process regarding his or her own health. These guidelines, geared toward this objective, discuss the child's right to medical information, the parents' legal responsibility for but not exclusive right over the child's health, and ways of encouraging the younger child's active participation in his or her own health care at an age-appropriate level of understanding. For adolescents, there should be a full and legally mandated power to make their own decisions regarding medical treatment.
Description
Date
2003-04
Publisher
Collections
Keywords
Paediatrics
Type
Article
Citation
Valid informed consent and participative decision-making in children with cancer and their parents: a report of the SIOP Working Committee on psychosocial issues in pediatric oncology. 2003, 40 (4):244-6 Med. Pediatr. Oncol.