The concerns of patients under palliative care and a heart failure clinic are not being met.

2.50
Hdl Handle:
http://hdl.handle.net/10541/84163
Title:
The concerns of patients under palliative care and a heart failure clinic are not being met.
Authors:
Anderson, Heather; Ward, Christopher M; Eardley, Anne; Gomm, S A; Connolly, M; Coppinger, T; Corgie, Delphine; Williams, J L; Makin, Wendy P
Abstract:
Patients with a terminal illness, identified by palliative care teams working in Manchester, and patients attending a heart failure clinic, were asked to participate in a prospective survey to determine their main concerns. Data were collected from 213 palliative care (PC) patients (mostly with cancer) and 66 patients with heart failure (HF). The median ages of the two patient groups were similar, but the HF patients were more likely to be male and living with a partner; 13% of PC and 7% of HF patients reported that they had no carer. The PC patients had more district nurse, hospice, social work and physiotherapy input. The most frequently reported troublesome problems for PC patients were pain (49%), loss of independence (30%) and difficulty walking (27%). HF patients reported dyspnoea (55%), angina (32%) and tiredness (27%) as the most troublesome problems. From a checklist of symptoms, the frequency of tiredness (PC = 77%, HF = 82%) and difficulty getting about (PC = 71%, HF = 65%) were high in each group. Psychological problems were reported by 61% of PC and 41% of HF patients. Cardiac patients reported more breathlessness and cough than PC patients (83% vs 49% and 44% vs 26%, respectively). Reduced libido was more common in cardiac patients (42% vs 21%). Patient disclosure of troublesome problems to professional carers was high (>87% in both PC and HF patients). Documented action was greater for physical than social or psychological problems. For PC patients, documented action was recorded for 83% physical, 43% social/functional and 52% psychological problems. For HF patients documented action was recorded for 74% cardiac, 60% physical - non-cardiac, 30% social/functional and 28% psychological problems. Clearly many patients' troublesome problems were not being addressed. As a result of this study, specific action by health care professionals was taken in 50% of PC patients and 71% of HF patients. We plan to target specific educational events on the treatment of physical problems, psychological assessment and social service provision.
Affiliation:
Department of Clinical Audit and Quality Assurance, Christie Hospital, Manchester, UK.
Citation:
The concerns of patients under palliative care and a heart failure clinic are not being met. 2001, 15 (4):279-86 Palliat Med
Journal:
Palliative Medicine
Issue Date:
Jul-2001
URI:
http://hdl.handle.net/10541/84163
DOI:
10.1191/026921601678320269
PubMed ID:
12054145
Type:
Article
Language:
en
ISSN:
0269-2163
Appears in Collections:
All Christie Publications ; All Paterson Institute for Cancer Research

Full metadata record

DC FieldValue Language
dc.contributor.authorAnderson, Heatheren
dc.contributor.authorWard, Christopher Men
dc.contributor.authorEardley, Anneen
dc.contributor.authorGomm, S Aen
dc.contributor.authorConnolly, Men
dc.contributor.authorCoppinger, Ten
dc.contributor.authorCorgie, Delphineen
dc.contributor.authorWilliams, J Len
dc.contributor.authorMakin, Wendy Pen
dc.date.accessioned2009-10-13T10:52:59Z-
dc.date.available2009-10-13T10:52:59Z-
dc.date.issued2001-07-
dc.identifier.citationThe concerns of patients under palliative care and a heart failure clinic are not being met. 2001, 15 (4):279-86 Palliat Meden
dc.identifier.issn0269-2163-
dc.identifier.pmid12054145-
dc.identifier.doi10.1191/026921601678320269-
dc.identifier.urihttp://hdl.handle.net/10541/84163-
dc.description.abstractPatients with a terminal illness, identified by palliative care teams working in Manchester, and patients attending a heart failure clinic, were asked to participate in a prospective survey to determine their main concerns. Data were collected from 213 palliative care (PC) patients (mostly with cancer) and 66 patients with heart failure (HF). The median ages of the two patient groups were similar, but the HF patients were more likely to be male and living with a partner; 13% of PC and 7% of HF patients reported that they had no carer. The PC patients had more district nurse, hospice, social work and physiotherapy input. The most frequently reported troublesome problems for PC patients were pain (49%), loss of independence (30%) and difficulty walking (27%). HF patients reported dyspnoea (55%), angina (32%) and tiredness (27%) as the most troublesome problems. From a checklist of symptoms, the frequency of tiredness (PC = 77%, HF = 82%) and difficulty getting about (PC = 71%, HF = 65%) were high in each group. Psychological problems were reported by 61% of PC and 41% of HF patients. Cardiac patients reported more breathlessness and cough than PC patients (83% vs 49% and 44% vs 26%, respectively). Reduced libido was more common in cardiac patients (42% vs 21%). Patient disclosure of troublesome problems to professional carers was high (>87% in both PC and HF patients). Documented action was greater for physical than social or psychological problems. For PC patients, documented action was recorded for 83% physical, 43% social/functional and 52% psychological problems. For HF patients documented action was recorded for 74% cardiac, 60% physical - non-cardiac, 30% social/functional and 28% psychological problems. Clearly many patients' troublesome problems were not being addressed. As a result of this study, specific action by health care professionals was taken in 50% of PC patients and 71% of HF patients. We plan to target specific educational events on the treatment of physical problems, psychological assessment and social service provision.en
dc.language.isoenen
dc.subjectCanceren
dc.subject.meshActivities of Daily Living-
dc.subject.meshAdult-
dc.subject.meshAged-
dc.subject.meshAged, 80 and over-
dc.subject.meshEngland-
dc.subject.meshFemale-
dc.subject.meshHealth Care Surveys-
dc.subject.meshHeart Failure-
dc.subject.meshHumans-
dc.subject.meshMale-
dc.subject.meshMiddle Aged-
dc.subject.meshNeoplasms-
dc.subject.meshOutpatient Clinics, Hospital-
dc.subject.meshPalliative Care-
dc.subject.meshPatient Acceptance of Health Care-
dc.subject.meshPatient Satisfaction-
dc.subject.meshProfessional-Patient Relations-
dc.subject.meshProspective Studies-
dc.subject.meshTerminal Care-
dc.titleThe concerns of patients under palliative care and a heart failure clinic are not being met.en
dc.typeArticleen
dc.contributor.departmentDepartment of Clinical Audit and Quality Assurance, Christie Hospital, Manchester, UK.en
dc.identifier.journalPalliative Medicineen

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