Valid informed consent and participative decision-making in children with cancer and their parents: a report of the SIOP Working Committee on psychosocial issues in pediatric oncology.

2.50
Hdl Handle:
http://hdl.handle.net/10541/78236
Title:
Valid informed consent and participative decision-making in children with cancer and their parents: a report of the SIOP Working Committee on psychosocial issues in pediatric oncology.
Authors:
Spinetta, John J; Masera, Giuseppe; Jankovic, Momcilo; Oppenheim, Daniel; Martins, Antonio Gentil; Ben Arush, Myriam Weyl; Van Dongen-Melman, Jeanette; Epelman, Claudia; Medin, Gabriela; Pekkanen, Kirsti; Eden, Tim O B
Abstract:
This is the tenth official document of the SIOP Working Committee on psychosocial issues in pediatric oncology, instituted in 1991. It is addressed to the pediatric oncology community. Children clearly have a right to participate in medical decisions regarding their own treatment, based on the developmental level of the child. The objective of these guidelines is to encourage physicians to share with the child developmentally relevant medical information specific to that particular child's health status, in the context of the child's own culture, so that he or she can actively participate in the decision-making process regarding his or her own health. These guidelines, geared toward this objective, discuss the child's right to medical information, the parents' legal responsibility for but not exclusive right over the child's health, and ways of encouraging the younger child's active participation in his or her own health care at an age-appropriate level of understanding. For adolescents, there should be a full and legally mandated power to make their own decisions regarding medical treatment.
Affiliation:
Department of Psychology, San Diego State University, San Diego, California, USA.
Citation:
Valid informed consent and participative decision-making in children with cancer and their parents: a report of the SIOP Working Committee on psychosocial issues in pediatric oncology. 2003, 40 (4):244-6 Med. Pediatr. Oncol.
Journal:
Medical and Pediatric Oncology
Issue Date:
Apr-2003
URI:
http://hdl.handle.net/10541/78236
DOI:
10.1002/mpo.10262
PubMed ID:
12555253
Type:
Article
Language:
en
ISSN:
0098-1532
Appears in Collections:
All Christie Publications

Full metadata record

DC FieldValue Language
dc.contributor.authorSpinetta, John J-
dc.contributor.authorMasera, Giuseppe-
dc.contributor.authorJankovic, Momcilo-
dc.contributor.authorOppenheim, Daniel-
dc.contributor.authorMartins, Antonio Gentil-
dc.contributor.authorBen Arush, Myriam Weyl-
dc.contributor.authorVan Dongen-Melman, Jeanette-
dc.contributor.authorEpelman, Claudia-
dc.contributor.authorMedin, Gabriela-
dc.contributor.authorPekkanen, Kirsti-
dc.contributor.authorEden, Tim O B-
dc.date.accessioned2009-08-21T14:20:29Z-
dc.date.available2009-08-21T14:20:29Z-
dc.date.issued2003-04-
dc.identifier.citationValid informed consent and participative decision-making in children with cancer and their parents: a report of the SIOP Working Committee on psychosocial issues in pediatric oncology. 2003, 40 (4):244-6 Med. Pediatr. Oncol.en
dc.identifier.issn0098-1532-
dc.identifier.pmid12555253-
dc.identifier.doi10.1002/mpo.10262-
dc.identifier.urihttp://hdl.handle.net/10541/78236-
dc.description.abstractThis is the tenth official document of the SIOP Working Committee on psychosocial issues in pediatric oncology, instituted in 1991. It is addressed to the pediatric oncology community. Children clearly have a right to participate in medical decisions regarding their own treatment, based on the developmental level of the child. The objective of these guidelines is to encourage physicians to share with the child developmentally relevant medical information specific to that particular child's health status, in the context of the child's own culture, so that he or she can actively participate in the decision-making process regarding his or her own health. These guidelines, geared toward this objective, discuss the child's right to medical information, the parents' legal responsibility for but not exclusive right over the child's health, and ways of encouraging the younger child's active participation in his or her own health care at an age-appropriate level of understanding. For adolescents, there should be a full and legally mandated power to make their own decisions regarding medical treatment.en
dc.language.isoenen
dc.subjectPaediatricsen
dc.subject.meshAdolescent-
dc.subject.meshAdult-
dc.subject.meshChild-
dc.subject.meshChild Welfare-
dc.subject.meshChild, Preschool-
dc.subject.meshDecision Making-
dc.subject.meshEthics, Medical-
dc.subject.meshHumans-
dc.subject.meshInformed Consent-
dc.subject.meshMedical Oncology-
dc.subject.meshParent-Child Relations-
dc.subject.meshPatient Advocacy-
dc.subject.meshPatient Participation-
dc.subject.meshPediatrics-
dc.subject.meshPractice Guidelines as Topic-
dc.titleValid informed consent and participative decision-making in children with cancer and their parents: a report of the SIOP Working Committee on psychosocial issues in pediatric oncology.en
dc.typeArticleen
dc.contributor.departmentDepartment of Psychology, San Diego State University, San Diego, California, USA.en
dc.identifier.journalMedical and Pediatric Oncologyen

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