A study to explore the patient's experience of peritoneal surface malignancies: pseudomyxoma peritonei.

2.50
Hdl Handle:
http://hdl.handle.net/10541/68835
Title:
A study to explore the patient's experience of peritoneal surface malignancies: pseudomyxoma peritonei.
Authors:
Witham, Gary; Willard, Carole; Ryan-Woolley, Bernadette; O'Dwyer, Sarah T
Abstract:
Pseudomyxoma peritonei (PMP) is a rare tumour originating from the appendix and producing extensive mucus accumulation within the abdomen and pelvis. Since UK government policy reinforces the importance of involving patients in the delivery of healthcare, it is essential to explore patients views so that service development can be fully responsive to the patients need. The primary objective of this study was to explore the impact of PMP on the lives of patients. The secondary objectives were to explore the sources of psychological support for patients, the symptoms experienced and their information concerns. In-depth interviews were conducted with a purposive sample of 13 patients. The interviews were tape recorded, with permission, transcribed in full and analysed for content and emerging themes. The emergent themes included significant uncertainty about the diagnosis and treatment of this rare condition. The difficulties associated with confirming an initial diagnosis and living with an uncertain prognosis were highlighted. Patients' choice and access to support by a specialist team were important themes. The data highlighted the particular needs of this under-researched patient group and provided evidence to further develop patient support, particularly using the Internet.
Affiliation:
Peritoneal Tumour Service, Christie Hospital NHS Foundation Trust, Withington, Manchester M20 4BX, UK. G.Witham@mmu.ac.uk
Citation:
A study to explore the patient's experience of peritoneal surface malignancies: pseudomyxoma peritonei. 2008, 12 (2):112-9 Eur J Oncol Nurs
Journal:
European Journal of Oncology Nursing
Issue Date:
Apr-2008
URI:
http://hdl.handle.net/10541/68835
DOI:
10.1016/j.ejon.2007.10.003
PubMed ID:
18295540
Type:
Article
Language:
en
ISSN:
1462-3889
Appears in Collections:
All Christie Publications ; Surgery

Full metadata record

DC FieldValue Language
dc.contributor.authorWitham, Gary-
dc.contributor.authorWillard, Carole-
dc.contributor.authorRyan-Woolley, Bernadette-
dc.contributor.authorO'Dwyer, Sarah T-
dc.date.accessioned2009-05-22T14:16:52Z-
dc.date.available2009-05-22T14:16:52Z-
dc.date.issued2008-04-
dc.identifier.citationA study to explore the patient's experience of peritoneal surface malignancies: pseudomyxoma peritonei. 2008, 12 (2):112-9 Eur J Oncol Nursen
dc.identifier.issn1462-3889-
dc.identifier.pmid18295540-
dc.identifier.doi10.1016/j.ejon.2007.10.003-
dc.identifier.urihttp://hdl.handle.net/10541/68835-
dc.description.abstractPseudomyxoma peritonei (PMP) is a rare tumour originating from the appendix and producing extensive mucus accumulation within the abdomen and pelvis. Since UK government policy reinforces the importance of involving patients in the delivery of healthcare, it is essential to explore patients views so that service development can be fully responsive to the patients need. The primary objective of this study was to explore the impact of PMP on the lives of patients. The secondary objectives were to explore the sources of psychological support for patients, the symptoms experienced and their information concerns. In-depth interviews were conducted with a purposive sample of 13 patients. The interviews were tape recorded, with permission, transcribed in full and analysed for content and emerging themes. The emergent themes included significant uncertainty about the diagnosis and treatment of this rare condition. The difficulties associated with confirming an initial diagnosis and living with an uncertain prognosis were highlighted. Patients' choice and access to support by a specialist team were important themes. The data highlighted the particular needs of this under-researched patient group and provided evidence to further develop patient support, particularly using the Internet.en
dc.language.isoenen
dc.subjectRare Cancersen
dc.subjectInformation Needsen
dc.subjectSymptomsen
dc.subject.meshAdaptation, Psychological-
dc.subject.meshAttitude to Health-
dc.subject.meshChoice Behavior-
dc.subject.meshCost of Illness-
dc.subject.meshFemale-
dc.subject.meshGreat Britain-
dc.subject.meshHealth Services Accessibility-
dc.subject.meshHealth Services Needs and Demand-
dc.subject.meshHumans-
dc.subject.meshInternet-
dc.subject.meshMale-
dc.subject.meshMiddle Aged-
dc.subject.meshNursing Methodology Research-
dc.subject.meshPatient Education as Topic-
dc.subject.meshPatient-Centered Care-
dc.subject.meshPeritoneal Neoplasms-
dc.subject.meshPrognosis-
dc.subject.meshPseudomyxoma Peritonei-
dc.subject.meshQualitative Research-
dc.subject.meshQuestionnaires-
dc.subject.meshRare Diseases-
dc.subject.meshSelf-Help Groups-
dc.subject.meshSocial Support-
dc.subject.meshUncertainty-
dc.titleA study to explore the patient's experience of peritoneal surface malignancies: pseudomyxoma peritonei.en
dc.typeArticleen
dc.contributor.departmentPeritoneal Tumour Service, Christie Hospital NHS Foundation Trust, Withington, Manchester M20 4BX, UK. G.Witham@mmu.ac.uken
dc.identifier.journalEuropean Journal of Oncology Nursingen

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